09 Dec M. from Ontario
I was diagnosed with Ledderhose which is a form of Dupuytrens in 2010. I spent a period of time being passed off from one doctor to another. Frustrated with the lack of information and treatment options. I finally performed independent google searches while sleep deprived trying to take care of my newborn twins and one year old son. I could barely walk or put weight on the affected foot. I sourced a contact name for the International Dupuytren Society which led me to connect with the president.
I had expressed my concern over the lack of information and Wolfgang informed me about a group of individuals in Canada who felt the same. It became very clear, very quickly that there was a strong need to establish a Canadian Dupuytren Society amongst the group to support Canadians.
I cannot express how much relief I felt to meet others who had experienced the same struggles I had around the general lack of information, inability to be properly diagnosed, and difficulties in identifying the most effective treatments as well as where to find them.
It was because of everything that I had gone through that I was eager to join in the creation and development of a Canadian Dupuytren Society. I wanted to ensure that others (who are at the beginning of their journey) have the opportunity of early Identification/diagnosis and detailed information about the best treatment options and choices for them. It is my sincere hope that no one will have to feel lost and alone in dealing with this disease.